Making intense connections…

Posted on by Daphne Gray-Grant

Despite eight years of experience as a public health nurse, Rhonda Jenkins* says she’s now working with pregnant women and young moms in a whole new way.

It’s a result of her role as a Nurse-Family Partnership (NFP) nurse with Island Health. “In the past I would see them in a clinic, hear their story and then watch them go off,” she says. “I often felt, ‘that kid has a lot on her plate,’ or ‘I hope she finds someone in her life to support her.’ Now I understand that someone is me.”

Making these critical and intense connections with young women who haven’t always had the opportunity to connect with supportive adults before is what inspires Jenkins. She knows there’s always the potential to help them have a better chance of succeeding as parents, whatever the challenges they may face.

“This is more in-depth and more personal,” she says.

Jenkins says she tries to convey the message that being a parent is a huge job — that goes on for a long time. She wants to help the young women find ways to meet their own needs, so they can give their children the love they require and deserve. “I see myself as their cheerleader in the tough times and someone who can celebrate with them in the good times,” she says.

For Jenkins, one of the biggest changes concurrent with NFP in BC has been the development of new prenatal registries, in which doctors, midwives and other community professionals are asked to refer women to public health as soon as they are aware of them being pregnant. “In the past, we wouldn’t see the moms until after the baby had been delivered,” she says. “There were so many women who didn’t know what services they could get.

“Now we provide a sort of one-stop shop that allows people to tell their story and see what’s available to them.”

Note that NFP is available only through the BC Healthy Connections Project for the duration of recruitment. Practitioners or young pregnant women can click here for details on how to reach public health and determine eligibility for the BCHCP.

* Name has been changed.

Sharing the excitement of a ‘unique’ study

Posted on by Daphne Gray-Grant

A scientist by training, Nicole Catherine speaks from the heart when it comes to the Nurse-Family Partnership (NFP). As scientific director and co-principal investigator of the BC Healthy Connections Project, she’s eager to test NFP.

“It reflects everything that appeals to me,” she says. “It’s consistent with my training. And it speaks to my heart because it’s an intervention for young, first-time mothers.”

Growing up poor, near Dundee — the fourth largest city in Scotland — Dr. Catherine saw her younger sister become pregnant at the age of 16 and witnessed, first-hand, the struggles she faced. At the time, the Dundee area had the highest teenage pregnancy rate in the United Kingdom. “My sister didn’t have the help she needed,” Dr. Catherine says, “and she struggles to this day.”

An intensive child and maternal health program, Nurse-Family Partnership gives disadvantaged women — who are preparing to parent for the first time — one-on-one home visits with public health nurses throughout the pregnancy, continuing until children reach their second birthday.

And the BC Healthy Connections Project is the first-ever scientific evaluation of NFP in Canada. Before leading this study, Dr. Catherine spent more than 10 years running randomized controlled trials on a wide variety of interventions, including another BC project promoting child health. She earned her PhD from UBC with a dissertation on children’s behaviour and biological responses to stress.

From there, she became a post-doctoral fellow in psychology at SFU — funded by the Canadian Institutes of Health Research — studying adolescent development.

But even then, she was familiar with NFP. “Anyone in the field of prevention science knows about it because it’s so ground-breaking,” she says. Although she’s studied newborns, children and adolescents, she welcomed the chance to work with pregnant women. “I’ve always known that intervening earlier is better,” she says.

Despite her rich experience with other scientific studies, Dr. Catherine describes the size and scope of this current project to be unique. To have the policy partners — the BC Ministry of Health, the BC Ministry of Children and Family Development and five Health Authorities — collaborating so closely with researchers is both unusual and invaluable, she says. “I’ve never experienced such a rigorous research-policy approach to an evaluation and it’s wonderful.”

Another aspect that makes the project unusual is its goal of recruiting more than a thousand women who are socially disadvantaged, young and pregnant. Doctors, midwives and other community professionals are being asked to refer pregnant women to their local public health unit as early in pregnancy as possible. Public health nurses then screen the young women, offering them existing services and assessing them for eligibility to the BC Healthy Connections Project.

As well, evaluating NFP is a huge endeavour. (Some 50% of participants are randomly allocated to receive existing services, while the remaining 50% are randomly allocated to receive NFP plus existing services.) The SFU Study Team conducts six interviews with each participant — throughout her pregnancy until her child’s second birthday. That’s more than 6,000 interviews.

To achieve this, Dr. Catherine supervises and supports the recruitment and training of SFU Study Team members as well as field interviewers, who are responsible for conducting interviews with all participants either in their homes or over the telephone. “That involves a lot of training so they become really skilled researchers,” she says. “They demonstrate respect and rapport with these young mothers who are giving us their valuable time.”

Each interview may be as long as two hours — inviting women to share their experiences in depth on topics such as preparing for parenting, health needs and social supports. “That’s a lot of data we’re collecting that needs to be coded, validated and analyzed,” she says.

Ultimately, the aim is to learn more about helping socially disadvantaged, young pregnant women, new mothers and children in BC. “It’s extremely rich data. It’s longitudinal, it’s in-depth, and it’s worthwhile,” Dr. Catherine says.

“It’s also an honour to hear these young women’s voices.”

Note that NFP is available only through the BC Healthy Connections Project (BCHCP) for the duration of recruitment. Practitioners or young pregnant women can click here for details on how to reach public health and determine eligibility for the BCHCP.

Prenatal Public Health seeks referrals

Posted on by Daphne Gray-Grant

There are 300 family doctors in Vancouver but no one knows exactly how many of them provide maternity care. There’s no list, no registry. At best, policy-makers can determine how many doctors deliver babies based on who has hospital privileges.

“But there’s a lot more maternity care providers than those who actually deliver babies,” says Joanne Wooldridge. “The challenge for us in Vancouver is the sheer number.”

As Regional Leader for Early Childhood Development, Wooldridge is helping spearhead recruitment for the BC Healthy Connections Project (BCHCP) in Vancouver Coastal Health. This means finding and connecting with doctors, midwives and nurse practitioners, and persuading them of the value of the project aimed at evaluating the effectiveness of the Nurse-Family Partnership (NFP).

NFP is an intensive maternal and child health program that provides disadvantaged young women — who are preparing to parent for the first time — with one-on-one home visits with public health nurses throughout pregnancy, continuing until children reach their second birthday. According to studies in the US, this sort of partnership empowers mothers to create better lives for their children and themselves. (The BCHCP will determine whether this is also true for BC mothers and children.)

Finding the primary care practitioners who can refer young women isn’t always easy but it’s smoother now the BC government is asking all primary caregivers to refer pregnant women to public health as soon as possible. Furthermore, it’s really easy to refer.

Once Wooldridge and her team identify and speak with a practitioner, they know the pitch they want to make. “In terms of the young women, particularly the ones 19 and younger, they’re going to receive support from public health to improve their life conditions,” Wooldridge says. “A strong connection can be a stabilizing influence for them.”

Housing is another issue. In Vancouver in particular, finding a place to live is so expensive that a large number of young people — especially those on low income — may not have a home. “They’re not homeless,” Wooldridge says. “But they’re effectively couch-surfing and this makes them especially vulnerable.” Public health nurses can help identify housing options and sort out better life opportunities for them.

Increasingly, midwives are also becoming an important group to reach. Some 20 percent of deliveries in Vancouver are managed by midwives. And while two decades ago their clientele might have been largely middle-class women, today they’re serving a different demographic. “Midwives tend to have a reasonable proportion of high-risk clients,” Wooldridge says, “and they often attract people who are not particularly trusting of the healthcare system.”

The good news, according to Wooldridge, is that her team sees “almost all women when they deliver,” in order to provide post-natal care. This allows them to follow up and figure out why women might not have been referred to public health. Most often, she says, it’s a result of someone going to the doctor or midwife too late. “If they were eligible for the BCHCP, we loop back to that physician or midwife and let them know that.”

As well, the Vancouver Coastal Health team makes a point of going back to practitioners who make public health referrals, thanking them and letting them know how the process has worked. “They’ve told us that over and over again that that feedback is critical,” Wooldridge says. “They will remember to refer [again] if they see the benefit in their own patients.”

Note that NFP is available only through the BC Healthy Connections Project for the duration of recruitment. Practitioners or young pregnant women can click here for details on how to reach public health and determine eligibility for the BCHCP.

Case conferences help public health nurses help families

Posted on by Daphne Gray-Grant

As a Nurse-Family Partnership (NFP) nurse supervisor with Fraser Heath, Monica Smith* understands that participants — disadvantaged young women preparing to parent for the first time — can face some challenging life situations. And these challenges can have an impact on the nurses helping them.

That’s why Smith’s team of eight public health nurses holds a case conference every two weeks. The value? To allow nurses to provide expertise and support for each other.

“One of the nurses on my team recently said ‘this is the most worthwhile thing I’ve done because it helps me really understand my clients’,” Smith recalls.

Preparing for the case conference is a big job in itself. The public health nurse must fill out a detailed form describing the young mothers in detail and assessing their risks, goals and plans in a variety of areas.

At the conference itself, which acts like a large brainstorming session, the nurse asks for help in areas in which she — or the young participant — may be stuck or struggling. “It’s a way that really connects that nurse to the larger group of nurses,” Smith says. “It’s very empowering. These young women are not alone and these nurses are not alone.”

Smith says her team experiences an enormous amount of heartache, as a result of the challenging life conditions faced by the young moms or moms-to-be. “It’s hard to experience that sadness,” she says. “If we didn’t come together to share that, I don’t think we’d be able to continue.”

At a recent case conference, the team focused on resiliency. Smith was particularly proud of a metaphor one of the nurses articulated, comparing resiliency to a willow tree. “It’s able to stretch and bend and then come back to almost the same shape, but changed,” she says. This resiliency, in turn, enables nurses to better help the young mothers (and the children) through the BC Healthy Connections Project.

*The nurse supervisor’s name has been changed to ensure privacy.

Young moms eager to help

Posted on by Daphne Gray-Grant

A cheerful young woman with a BA in psychology, Lori Esler* is a scientific interviewer who works with SFU’s Children’s Health Policy Centre on Vancouver Island.

Her job? To interview participants in the BC Healthy Connections Project, an evaluation of the Nurse-Family Partnership (NFP) program that’s taking place over the next five years.

Developed in the US but never before tested in Canada, the Nurse-family Partnership provides intensive public health nursing visits to disadvantaged young women — who are preparing to parent for the first time — starting in pregnancy. Although eligibility criteria for the project are quite specific — participants must be disadvantaged first-time mothers 24 years or younger — Esler says the group seems very diverse. “When I first meet people they’re polite and a bit reserved,” she says. “But as the interview progresses they open up a little bit more.”

The youngest participants — those under 19 years — may be living temporarily with their parents. Others might be homeless. Many are living on very low income. Some may have suffered serious childhood adversities. “They’re all in totally different situations, which surprised me a little,” Esler says. “But people are just people and I find them so interesting.”

Although she doesn’t know which women are receiving Nurse-Family Partnership (only 50% do), Esler interviews them all. This policy helps ensure the evaluation data are not biased. And everyone she interviews, Esler says, is excited about participating.

“I had one woman say to me, ‘oh my gosh, I’ve a hard time figuring out how to get what I need. If my taking part in this study will help someone else, then I’m really glad to do it.’”

*Name has been changed to protect privacy.

Why a process evaluation?

Posted on by Daphne Gray-Grant

Say the words “Nurse-Family Partnership” (or NFP) and most people will imagine a nurse visiting a mom and her family. But say the words “process evaluation” and most people will likely draw a blank.

A process evaluation, however, is a vital part of scientific studies such as the randomized controlled trial or RCT being conducted through the BC Healthy Connections Project (BCHCP).

A kind of a study of a study, a process evaluation determines how well an intervention is being implemented and what factors may be influencing the outcomes. In the case of the BCHCP, for example, the NFP intervention — home visiting by public health nurses or PHNs — is being delivered to young, low-income women who are preparing to parent for the first time.

But NFP is being delivered in very diverse communities across BC, notes Susan Jack, who is principal investigator for the study’s process evaluation, which is being funded by the Public Health Agency of Canada. “What happens when the program is delivered in smaller communities where there may be more barriers to travel and communication? And are there differences in delivering NFP between urban and rural areas in BC?” she asks. “We’re going to try to understand all these variables.”

NFP, which starts early in pregnancy and continues until children reach their second birthday, has proven successful over 35 years in the US. But this current RCT is the first scientific evaluation of the program in Canada. (NFP’s founder, David Olds, explains why an RCT is necessary.)

The primary participants in the process evaluation, however, won’t be the women and children. They’ll be the PHNs and nursing supervisors who are responsible for NFP visits. “We’ll be interviewing them every six months to explore where they are with the program, the challenges that have come up, their perceptions of the education they’ve received and any gaps that may exist,” Jack says.

The process evaluation will also study how the program is being implemented in five different Health Authorities to meet the needs of families across the province. One of its most important functions is to determine whether the program is being delivered with fidelity to the NFP model,” Jack says, mentioning the high frequency of visits that mothers are offered as an example. “If that’s not happening then we need to know why.” More broadly, the process evaluation will also help us understand BC’s unique context – including the situations faced by PHNs, their supervisors and the families they visit – and the solutions developed by the NFP teams to resolve any emergent challenges.

Another issue for the process evaluation is refining the NFP model to meet the unique needs of young, disadvantaged first-time mothers in BC. These young women are often hard to reach because they may not have stable housing, reliable work or supportive extended families – at a time in their lives when they need a lot of support. PHNs in turn may find it challenging to locate young people who may be highly mobile. Financial difficulties may also lead to some women not having easy access to phones. For example, “many families use phone cards and once the phone card runs out, they don’t have land lines,” Jack says. “Many of the young moms we work with go from family to family, and many of the nurses will struggle with trying to locate them.”

These young women may also not have had good role models to help them learn what a trusting relationship looks like or how to maintain healthy relationships. This will potentially make building a trusting relationship with their NFP PHN more challenging. This is yet another issue that the process evaluation will investigate.

Jack has high hopes for the process evaluation and high praise for the BC PHNs she has met. “The NFP nurses in BC are among the most skilled I’ve ever worked with,” she says. “We’re still refining everything and testing the tools and the procedures. But our work with the BC process evaluation will be a huge benefit for the international NFP community.”

Note that NFP is available only through the BC Healthy Connections Project (BCHCP) for the duration of recruitment. Practitioners or young pregnant women can click here for details on how to reach public health and determine eligibility for the BCHCP.

Fewer than one-third of kids with mental disorders receive treatment, director says

Posted on by Daphne Gray-Grant

Tens of thousands of BC’s young people are experiencing mental health problems every year but fewer than a third of them actually receive treatment. That was the stark message from the Director of SFU’s Children’s Health Policy Centre to the Members of the Legislative Assembly of BC on the Select Standing Committee on Children and Youth.

“About 13 percent of kids are experiencing one or more mental disorders,” said Charlotte Waddell, who also holds the Canada Research Chair in Children’s Health Policy. “That means the total population affected is about 84,000 in BC at any given time, and about 678,000 in Canada. And we’re serving fewer than one-third of them,” she said. That translates to about 26,000 children and youth in BC and 212,000 in Canada.

Waddell presented her evidence to the committee June 11, 2014, when it was meeting in Vancouver as part of a special project examining youth mental health. Part of the committee’s mandate is to foster greater awareness and understanding of the BC child and youth service system.

In presenting her report, Waddell emphasized that most mental health problems start well before adulthood and, in fact, many start well before adolescence.

In the very early years, autism, anxiety, disruptive behaviours and attention-deficit/hyperactivity disorder emerge. In the middle years, seven to 12, anxiety, depression and conduct disorder begin to appear. Then, in the teen years, substance use, bipolar disorder, eating disorders and schizophrenia can take hold, Waddell said.

“Unspeakable losses and unspeakable severity are what we’re talking about,” she said. “If we don’t intervene and if we don’t intervene effectively these disorders persist, and they carry on throughout adulthood.”

As a result, young people may not finish school and may not even be able to participate in the workforce. They also have increased physical health problems, and “early mortality is significantly increased in people with mental health problems,” she said. The impact on society is also very serious, with costs exceeding $50 billion annually in Canada.

A large part of the problem, Waddell said is that Canada may spend $200 billion annually on health — but little of that goes to children and youth.

“I cannot imagine anyone saying that it was acceptable to have only 30 percent of kids with cancer receiving treatment when we had a host of effective treatments,” Waddell said. “But that’s what we’re doing with mental health problems.”

Waddell concluded by making five recommendations to the committee:

Acknowledge that mental disorders start at the beginning of life and provide a comprehensive range of evidence-based interventions at each stage of development, starting in early childhood.
Triple investments in evidence-based treatment services to reduce symptoms and impairment among all children and youth with established mental disorders.
Make equivalent investments in evidence-based prevention programs to reduce both prevalence and the need for treatment services over time, starting with the four most common preventable disorders (anxiety, substance use, conduct and depressive disorders).
Evaluate all treatment services and prevention programs to ensure they are effective.
Invest in new data collection to monitor the prevalence of child and youth mental disorders over time.

“Investments in the mental health of young people are among the most important investments that any of us can make,” she told the committee.

A copy of Waddell’s slide show can be seen here. A copy of the report she tabled is available here.

Child and Youth Mental Disorders: Prevalence and Evidence-Based Interventions

Posted on by Daphne Gray-Grant

Child and Youth Mental Disorders: Prevalence and Evidence-Based Interventions is a report that was prepared for the BC Ministry of Children and Family Development. It provides the latest research evidence on the prevalence of mental disorders in children and youth along with estimates of the number affected in BC and Canada. It also presents the latest research evidence on effective prevention and treatment interventions and makes recommendations for new public investments needed to improve child and youth mental health.

Charlotte Waddell, the lead author of the report and the Director of the Children’s Health Policy Centre, presented this evidence to BC’s Legislative Select Standing Committee on Children and Youth on June 11, 2014.

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New Mowafaghian appointment made

Posted on by Daphne Gray-Grant

Dr. Nicole Catherine has been appointed Mowafaghian University Research Associate with SFU’s Children’s Health Policy Centre. She is also Scientific Director for the BC Healthy Connections Project and Adjunct Professor in the Faculty of Health Sciences at SFU.

Dr. Catherine completed her BSc in pharmacology at Dundee University, Scotland, followed by an MSc in nutritional sciences at the University of Toronto. She received her PhD in educational psychology at UBC, studying the neurobiology of social support and child behaviour. Before joining the Children’s Health Policy Centre, she was a post-doctoral fellow in psychology at SFU, studying the neurobiology of adolescent development. She has more than 10 years of experience leading randomized controlled trials.

Funding for this University Research Associate position is made possible by the generous support of the Mowafaghian Foundation, which aims to better the lives of children through health and education.

Mental health day marked by event on bullying

Posted on by Daphne Gray-Grant

The Children’s Health Policy Centre marked May 7 — National Child & Youth Mental Health Day — with an event on bullying featuring Debra Pepler from York University.

Held at the Wosk Centre, the half-day event attracted almost 150 academics, teachers, policy-makers and parents. Pepler spoke for roughly 45 minutes making a convincing case that social learning is just as important as academic learning and that Canadian children are socially behind children in other countries. Her talk included several videos of children in playgrounds being bullied.

Following her presentation, members of the audience contributed their observations and feedback. “Can we prevent bullying?” was the Mowafaghian annual Children’s health policy visiting speaker event.